I stumbled across this post last week, and haven’t been able to get it off my mind. If you have waited years for diagnosis, or perhaps you know the name of what makes you ill, you will appreciate this letter. Michelle has a fantastic blog- she’s both honest and feisty. I encourage you to take a moment to see what she has to say. But first, read this letter she found. It’s an eye opener.
***Please note that this is not a post I have written, but rather an article on a Crohn’s Facebook page I follow. I thought it was a great read and wanted to share, but for some reason the link was bad. –Michelle
A LETTER TO PATIENTSWITHCHRONICDISEASE
July 14, 2010
by Rob Lamberts
Dear Patients: You have it very hard, much harder than most people understand. Having sat for 16 years listening to the stories, seeing the tiredness in your eyes, hearing you try to describe the indescribable, I have come to understand that I too can’t understand what your lives are like. How do you answer the question, “how do you feel?” when you’ve forgotten what “normal” feels like? How do you deal with all of the people who think you are exaggerating your pain, your emotions, your fatigue? How do you decide when to believe them…
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